I will be the first of the four researchers to work through the full
experiment that is being conducted and recorded here. Each person in our
group is ushered into a step after the person before them finishes it.
So once my week two is finished, the next researcher will be beginning
week two. Our experiment includes four weeks of varying degrees of
restricted movement in order for us to fully understand what it's like
to live with FOP. Our week 1 was used for controls to see how different
it is completely simple tasks with and without FOP. Week 2 introduces
two wrist braces, one on each arm, to restrict the basic movements of
our hands that we take for granted.
I am currently
wearing the braces and will be continuously wearing them until Wednesday
of next week in order to maintain the illusion of having lost the use
of my wrist. It's taking a lot of effort to just type on my keyboard to
write this blog entry this morning. I guess I never really realized how
much our wrists move while typing, so having that taken away is a whole
new mess for me. I have to keep my hand elevated above the keyboard
rather than wresting my wrists on it like I normally do. If I rest my
wrists I can't bend them enough to reach all of the keys I need.
I
have a couple of pills that I take daily and with the braces it took me
almost 5 minutes to find a way to open the bottle that I can normally
open in less than 30 seconds. By the time I got it open I was extremely
frustrated and didn't even bother to close it up again. Without my
wrists I had to roughly jab the top against my palm, but couldn't really
twist it right so it was a struggle. My frustrations only got worse
when I attempted to go through and fold all of my clean laundry. It
wasn't too hard but still took longer than normal to finish.
At the end of the day I just feel frustrated and tired of dealing with the braces already.
~Krisen
No comments:
Post a Comment