Hello everybody and welcome to Team Milo's blog! My name is Sean Fazio and I am currently a sophomore studying biochemistry and molecular biology at Michigan State University. As a part of our study on fibrodysplasia ossificans progressiva we are conducting a 30 day social experiment to help us better understand the disease from the point of view of somebody infected with it. We will attempt to simulate the challenges an FOP patient endures by enacting restrictions as to how and what we do. It is our goal to accurately reflect on the daily challenges and problems on this blog as we encounter them during the our experiment.
Sean
1-26-13 (Initial Post)
Sean,
ReplyDeleteFOP is not a contagious disease: one does not "become infected" with a mutation or an inherited condition.
One of the challenges for those with FOP is that every day can have a "New Normal". Today, an FOPer might be able to touch their toes: tomorrow morning, they might not move their shoulder. And they never know what surprise may be in store!
Has your team discussed FOP with a FOP patient? Is there interest? Please let me know and I can get you in contact with the right folks.